Why Sarcoma Needs Specialized Diagnosis and Treatment

By: Winship Cancer Institute
Date: Jul 26, 2024

Sarcomas are a group of cancers that start in bones or soft tissues like muscles, fat, blood vessels or nerves. Sarcomas are rare, and make up less than 1% of all adult cancers in the U.S., with about 13,000 new cases each year. There are over 150 types of sarcomas. Each one behaves differently and needs particular care. Because they are rare and there are so many different types, sarcomas require a specialized approach to diagnosis and treatment.

Sarcoma expert Kenneth Cardona, MD, a surgical oncologist at Winship Cancer Institute of Emory University, says, "The challenge of this disease is, because of its rarity, people with sarcoma go undiagnosed or get misdiagnosed initially. And if they are appropriately diagnosed, how best to treat them is quite nuanced."

Types of Sarcoma

  • Bone Sarcomas: Bone cancers, such as osteosarcoma, chordoma and chondrosarcoma, are extremely rare and typically develop in children.
  • Soft Tissue Sarcomas: There are more than 100 distinct types of soft tissue cancers. Common types include undifferentiated pleomorphic sarcoma (UPS), liposarcoma, leiomyosarcoma, malignant peripheral nerve sheath tumor and synovial sarcoma.

Symptoms of Sarcoma

  • Early Symptoms: Sarcomas can start as a painless lump or swelling. As they grow, they might cause pain, discomfort or other symptoms depending on their location.
  • Bone Sarcoma Symptoms: These can include pain in the affected bone, swelling or fractures.
  • Soft Tissue Sarcoma Symptoms: Symptoms may vary widely depending on where they a sarcoma is in the body. For example, the symptoms of a sarcoma located in your arms may be different than one located in your legs or abdominal area. Symptoms can include a noticeable lump, pain if the tumor presses on nerves or muscles, or a feeling of abdominal fullness.

What Should You Consider When Choosing Sarcoma Care?

When you or a loved one is diagnosed with sarcoma, it is important to find doctors who know this rare type of cancer well. At Winship Cancer Institute of Emory University, a team of sarcoma specialists offers expert care and the latest treatments to help patients from Georgia and across the Southeast. The Winship care team includes medical oncologists, radiation oncologists, surgical oncologists, orthopedic surgeons, pathologists, radiologists and other specialists—all with expertise in sarcoma. They work together to create personalized treatment plans for each patient.

“As compared to carcinoma or organ tumors, the likelihood of you having a sarcoma is rare,” says Winship orthopedic surgeon and sarcoma expert Jonathan Morris, MD. “So, having doctors with the right skill set and expert knowledge is also rare.” Winship is fortunate to have such experts.

The Winship team approach ensures that every part of your care is well coordinated and effective. For instance, a patient with bone sarcoma might need chemotherapy before surgery and would rarely, if ever, need radiation. At Winship, these treatments are planned and delivered by a team of specialists who meet regularly to discuss cases and decide on a treatment plan, including the option of clinical trials, to ensure the best possible outcomes.

Advanced Treatments

One important benefit of choosing Winship for your care is access to advanced treatments like proton therapy. This type of radiation treatment targets tumors precisely, causing less damage to nearby healthy tissue. This precision is especially helpful for sarcoma patients because it reduces side effects and protects important organs. This advanced type of treatment is available at Emory Proton Therapy Center, the only proton center in Georgia.

Other forms of advanced treatment include minimally invasive surgical techniques, targeted therapies and immunotherapies. Our goal is to provide the most effective treatments with the least impact on your quality of life.

Genetics, which refers to the traits passed down from one generation to another, and genomics, a person’s genetic makeup, are driving new treatment approaches. “As we've learned the genetics of cancer and been able to study the genomics, what we're able to do is create targeted therapies to help focus and specifically attack the sarcoma cells,” says Dr. Morris. “And we're also able to apply these novel therapies that are developed for other cancers. At Winship, we’re committed to discovering and developing new therapies.”

Winship Cancer Institute is the only National Cancer Institute (NCI)-designated Comprehensive Cancer Center in Georgia. NCI designation is awarded to cancer centers leading the nation in progress against cancer through their research and training. This designation provides patients access to new therapies and clinical trials not widely available elsewhere, and research shows the chances of surviving cancer are up to 25% higher when starting treatment at an NCI-designated center.

"At Winship, we believe in turning scientific advances into hope for our patients," says Dr. Cardona. "Our goal is to help you live longer and feel better through innovative treatments and compassionate care. We know that a cancer diagnosis can be overwhelming. Our team provides support every step of the way, from diagnosis through treatment and beyond."

Cancer Care Reimagined

Winship’s sarcoma care is provided at Winship Cancer Institute at Emory Midtown, a full-service cancer care center designed to ease the burden of cancer. Nearly all the services you need — from precision diagnostics and doctors’ appointments to advanced treatments, clinical trials and support services — are conveniently brought to you in one place by collaborative teams specialized in your type of cancer. This unique care model was shaped from the imagination of patients and care teams and focuses on quality, outcomes and your needs and comfort to help you live a full life.

Comprehensive Support

Winship offers a range of services to help you and your family cope with the emotional, psychological and practical challenges of a cancer diagnosis. Support services at Winship include counseling, nutritional advice, pain management, support groups and much more. These services are designed to help you manage the side effects of treatment, maintain your quality of life and find support during a difficult time.

Request an Appointment

If you or a loved one is diagnosed with sarcoma, Winship Cancer Institute is here to help. Our skilled team, advanced treatments, collaborative approach and comprehensive services provide the best care for patients dealing with this rare and challenging disease. By choosing Winship, you are choosing a team committed to providing the highest level of care and the best possible outcomes. Learn more about sarcoma care at Winship.

Request an Appointment with Winship of Emory

 

About Winship Cancer Institute of Emory University

Dedicated to discovering cures for cancer and inspiring hope, Winship Cancer Institute of Emory University is Georgia’s only National Cancer Institute-designated Comprehensive Cancer Center, a prestigious distinction given to the top tier of cancer centers nationwide for making breakthroughs against cancer. Winship is researching, developing, teaching and providing patients with novel and highly effective ways to prevent, detect, diagnose, treat and survive cancer. Cancer care at Winship includes leading cancer specialists collaborating across disciplines to tailor treatment plans to each patient’s needs; innovative therapies and clinical trials; comprehensive patient and family support services; and a care experience aimed at easing the burden of cancer. Winship is Where Science Becomes Hope®.

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